Ten new transnational research projects on health and social care for neurodegenerative diseases

The EU Joint Programme on Neurodegenerative Disease Research (JPND) has awarded funding to ten multinational research teams in order to increase understanding of the factors that contribute to the quality and delivery of health and social care for neurodegenerative diseases.

Current research suggests strong potential for improving quality of life for those living with neurodegenerative diseases such as Alzheimer’s disease and Parkinson’s disease, with novel health and social care concepts and innovations focusing on the preservation of dignity, independence and social inclusion. Nevertheless, the availability and quality of such services vary considerably across Europe and beyond. JPND has selected ten multi-disciplinary collaborative projects that address health and social care at both the macro level of systems and infrastructures and the individual level of patients, care-givers and families.

"While waiting for new treatments to emerge from basic and translational research, we need to support projects that could deliver immediate impactful developments which health and social care research and innovation may be able to achieve. This includes new insights that point to the potential for improved patient empowerment, civic participation and quality of life," said Professor Philippe Amouyel, Chair of JPND. "Our hope is that this work will lead to the adoption of novel health promotion strategies that will reduce the impact of disease for patients as well as for their families and carers."

The ten projects recommended for funding are listed below:

ADDITION: Alzheimer’s disease data-driven insights on individual outcomes of importance
(Including partner Wiesje van der Flier, VU University Medical Center, The Netherlands)

COGNISANCE:  CO-desiGning demeNtia dIagnoSis ANd post-diagnostic CarE
(Including partner Frans Verhey F, Maastricht University, The Netherlands)

DOMINO-HD: Multi-Domain Lifestyle Targets for Improving ProgNOsis in Huntington’s Disease

FCDS Study: Scaling up the Family Carer Decision Support Intervention: A transnational effectiveness-implementation evaluation
(Including partner Jenny van der Steen, Leiden University Medical Centre, The Netherlands)

HEALTHE-RND: European eHealth care model for rare neurodegenerative diseases
(including partners Wilco Achterberg, Leiden University Medical Center, Topaz Huntington Center Overduin, The Netherlands, and Niels Chavannes, Leiden University Medical Center, Department of Public Health and Primary Care, The Netherlands)

HOMESIDE: A HOME-based Spousal caregiver-delivered music Intervention for people living with DEmentia: A Randomised Controlled Trial

iCARE-PD: Integrated Parkinson Care Networks: addressing complex care in Parkinson disease in contemporary society

OPTIM-PARK: Optimization of community resources and systems of support to enhance the process of living with Parkinson’s Disease: a multisectoral intervention

SHAPE: Self-management and HeAlth Promotion in Early-stage dementia with e-learning for carers – A randomised controlled trial

SHARED: Social Health And Reserve in the Dementia patient journey
(Incl. coordinator: Arfan Ikram, Erasmus MC Rotterdam, The Netherlands, and
partner René Melis, Radboud UMC, The Netherlands)

For more information, please visit the JPND website

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